In 2007, while I was working at a tile showroom, I met Kimberly Niemela. Kim is the owner of COSACOSA art at large, Inc. which is a non-profit organization creating new public art specific to the concerns of Philadelphia neighborhoods in direct, long-term collaboration with city residents.
I had the opportunity to help her create the mosaic she was working on at the time. The Mosaic was for the Oncology Department at The Children’s Hospital of Philadelphia, based on an image of Alex’s Lemonade Stand.
I was able to find information on the artwork because the mosaic was moved in 2015. It had been located in the playroom of the Alex Scott Day Hospital in the Wood Center, and was moved with the unit to the new Buerger Center for Advanced Pediatric Care. (more…)
John Grisham says THE TUMOR is the most important book he has ever written. In this short book, he provides readers with a fictional account of how a real, new medical technology could revolutionize the future of medicine by curing with sound.
Grisham, 61, lives near Charlottesville, not far from Neal Kassell, a prominent University of Virginia neurosurgeon who founded the Focused Ultrasound Foundation in 2006. They became friends, inhabiting the same social circle and wine tastings.
About eight years ago, Kassell asked Grisham to join the foundation’s board. Grisham did not know what he could I add to the board. Kassell said he could raise awareness, which leads to raising money, which leads to influence.
In 2014, the foundation spent $2.3 million on research and another $2.7 million on communications and advocacy, according to its annual report. This winter, it held two “reimbursement summits,” trying to persuade insurers to pay for the treatment.
But Grisham, wasn’t interested in pleading for cash.
A few years ago, Grisham said he had a better, more organic way to employ his fame — by writing a book about the technology. (more…)
In the events page you may have seen the The Run, Walk, Roll for Brain Injury. I posted this for a friend who is a teacher at Children Hospital of Philadelphia. She has been very active in her job helping children with brain injuries. She even has a certification to teach children with brain injuries from The Brain Injury Association of Pennsylvania. She also runs an after school support group for children that were patients of CHOP and are now living fulfilling lives.
This event is personal for me because I had a brain injury in 1994. I was riding a dirt bike and crashed into the side of a building. In those days there was not much support for children in my situation, at least not as much as there is today. I had no one to share in my experience, and what I was going through. I was able to join in one of her groups and share my story with children half my age. But, it was interesting to see how much support and knowledge they were given to understand how their brain had changed since the injury.
The event, which will be held on April 9th will support The Brain Injury Association of Pennsylvania and camp cranium.
These organizations are committed to preventing brain injury and improving the quality of life for people who have experienced brain injury.
Camp Cranium is a non-profit summer camp dedicated to providing a one-of-a-kind experience for children ages 6-18 with brain injuries. For a week each summer, children who have had a traumatic brain injury or stroke have the unique opportunity to meet other children with brain injuries in a safe, supportive, and fun environment. Campers form lasting friendships, improve their self-confidence and independence, and achieve goals they didn’t believe were possible.(more…)
Emily was diagnosed with acute lymphoblastic leukemia (ALL) at age five in May 2010 and relapsed twice. After the second relapse, the Whiteheads were told they were out of options to treat her cancer. Not willing to give up, the Whiteheads pursued a radical new treatment called T-cell therapy at Children’s Hospital of Philadelphia (CHOP).
Emily was the first child enrolled in the phase I clinical trial (known as CART-19 or CTL019) in April 2012. Her T-cells (a type of white blood cell) were collected from her body, and then, in a process using a disabled form of the human immunodeficiency virus (HIV), the T-cells were genetically reprogrammed to recognize and attack cancer cells. When the modified T-cells were put back into Emily she became very sick and spent several weeks in the intensive care unit on a ventilator. At one point her doctor said she had only a 1 in 1000 chance of surviving the night. Not only did Emily survive that night, but a few weeks later her family was given the miracle they had prayed for: the T-cell therapy worked. Doctors couldn’t detect a single cancer cell in her body. Today, Emily is nearing three years cancer free.
Emily’s story gained worldwide attention and the trial has continued to achieve unprecedented results and provide hope to many other families facing the disease. Emily and her parents, Tom and Kari, now travel to speak at events and conferences to raise awareness and share their inspirational journey.
Charles R. Drew was born on June 3, 1904, in Washington, D.C. He was an African-American physician who developed ways to process and store blood plasma in “blood banks.” He directed the blood plasma programs of the United States and Great Britain in World War II, but resigned after a ruling that the blood of African-Americans would be segregated. He died on April 1, 1950. (more…)
When I first learned about the BIG CLIMB PHILLY, I was at an expo for the Philadelphia Marathon. The Big Climb Philly will take place on April 23rd when participants will climb 1,092 steps to the 43rd floor of the Comcast Center in support of LLS. The event itself is amazing, but what brought the Big Climb to Philadelphia is an even better story.
Duncan Glew, a Penn Charter ninth grader brought the idea for the Big Climb to Philadelphia. When he was diagnosed with leukemia in 2012 he lived in Seattle and attended the Seattle County Day School. In 2013 his school supported him by participating in the Big Climb and raising $185,000 for LLS. Soon after, Duncan was asked to be an honoree for LLS and the Seattle Big Climb. He wanted to continue to contribute as an honoree but by then he was living in Philadelphia to undergo t-cell treatment at Children’s Hospital of Philadelphia. (more…)
Saturday, January 23rd, Tim Mahoney attended Penn Charters Cancer Conference and Big Climb Philly Kickoff.
The event was held to begin the countdown to Big Climb Philly, the Leukemia & Lymphoma Society’s inaugural stair climb to the top of Philadelphia’s tallest skyscraper. The Comcast Center will host this April 23 fundraiser, providing an opportunity for 1,500 people to test themselves on the 43-flight event course in support of the LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
BIG CLIMB PHILLY is The Leukemia & Lymphoma Society’s inaugural stair climb to the top of Philadelphia’s tallest skyscraper, challenging the community to join LLS in the battle against blood cancers!
Rising 974 feet above the dynamic cityscape of Philadelphia, the Comcast Center will host this exhilarating, one-of-a-kind event, providing an opportunity for 1,500 people to test themselves on the 43-flight event course in support of the LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
On April 23, 2016, these fundraisers will conquer 1,092 steps and 664 feet of vertical elevation to reach the top, and fulfill our motto: Climb. Conquer. Cure.
Event Day Information
Date: April 23, 2016
Location: 1701 John F Kennedy Blvd, Philadelphia, PA 19103